 We, Dave and Vicky, took ourselves up to Sight Village South East last week, along with a friend, Gary who works at Sight for Surrey as their Assistive Technology Trainer.
Sight Village is the name given to the exhibitions that are organised and run by Queen Alexandra College. There are 5 ‘Sight Village’ exhibitions held throughout the year (South-West, Central, West Midlands, North-West and South-East) and are described as “The UK's leading exhibitions for blind and partially sighted people and for those experiencing sight problems”. To be honest, Dave and I had discussed whether we would go again this year as we’ve been for the last few years, but we decided that we should – and we’re really glad we did. Having fuelled up with breakfast en route, we made our way to High Street Kensington Tube. There were Sight Village volunteers at the tube ready to sight guide or support people to the venue itself, we declined their offer of assistance though as the 3 of us were managing okay. A guy called Steve also asked if he could just walk with us, which was fine, we joked about us all getting lost together and me not having another guiding arm available but Steve was ok just to follow us and as it’s only a brief distance we all got there ok. Once we arrived, following the obligatory photo to prove our attendance, Dave, Gary and I went straight into the main hall. Many of the stands were familiar and focussed on CCTV and OCR technologies. We took the opportunity to head to the Sight and Sound Technology stand and, at Gary’s suggestion, managed to get our hands on and explore their MiniVision and SmartVision 2 mobile phones. We then chatted to Barclays, mainly about the current issue Dave has regarding the recent App update not reading transaction dates on the statement correctly. As always they were keen to know about this and Dave gave them a demo of what’s wrong. They promised to pass it on to their Digital Access Manager the following day – let’s hope it gets corrected soon! As the Amazon stand was quiet, we took the opportunity to have a quick listen to the new Amazon Echo Studio, a beefy smart speaker that will play streamed HD audio quality music. This sounded lovely but we were informed that presales were more than 700% greater than expected so, even though it goes on sale this month, they’ll not be available to purchase until at least February 2020, although currently showing on Amazon as retailing at £189.99 and available from 25th December 2019 – probably not one for this year’s Christmas list though. We had a brief chat with Kevin at the Look UK stand and found out about the charity, the support and information they provide to young vision impaired people and their families and their peer mentoring service for vision impaired students aged between 11 and 29. Gary was keen for us to have a look at the Synapptic TV Box. We had a demo of this from Ken at their stand. If you’re looking for a fully accessible way of watching live or catch up TV, catching up with box sets, keeping up with your emails or doing some online shopping, then this might be the ideal solution for you! Our next stop was at the En-Vision America stand where we met and had a long and interesting chat with David. He demonstrated the audible prescription service called ScripTalk, a service that has been available across the USA and Canada for several years. En-Vision are keen to bring ScripTalk to the UK and David was at the exhibition trying to raise the awareness of the product and to engage with vision impaired people and get their views on the service. We all agreed that this is a great product and a service that should be available in the UK. Its definitely something that we’ll be shouting about, demonstrating on our training and raising awareness of over the coming months. The traditional white cane has been around for years and companies have tried to bring it in to the 20th century by adding GPS and motion sensors but no-one has yet put lights in it… until now! Lighting up the exhibition halls was Dave from ‘Gizahand’ with their new illuminating long cane. This was a cool product that was designed to help a person using the long cane be more visible to other pedestrians, cyclists and drivers. Basically the bottom quarter of the traditional folding cane has been replaced with a durable opaque section that is filled with LED lights. It’s powered by a USB power bank that fits in to the top of the handle and provides over 3 hours of light from a 2 hour charge. Although a fun idea, at £129.95 + delivery, it’s another item that won’t be finding its way on to Dave’s Christmas list this year! During our rounds, we stopped off and had a long chat with Andrew from TravelEyes. It’s always great to catch up with him and we chatted loads about Amir Latif’s recent TV programme Travelling Blind and all the other things he’s now up to. Dave and Gary both entered their competition to win a trip to Burma (the offer was only available for VI people otherwise I (Vicky) would’ve been straight in there too!!). Going on one of their holidays is still something I’d love to do, but it’s just not feasible at the moment with family commitments etc. We bumped into Stella from the Macular Society, a friend and previous work colleague of both Dave and Gary’s and as well as taking the opportunity to wish her a happy birthday, we also caught up with the work they are doing. And finally we took the opportunity to sit in on the ATW Solutions seminar where we met and heard from Colin Fowler, the founder of ATW Solutions. He discussed how they can help with Access to Work (ATW) applications, propose reasonable adjustments within the workplace and provide recruitment services for employment support workers. One thing we did all notice was that the exhibition was less busy this year and that there is definitely a lack of organisations with ‘daily living’ products now exhibiting. Let’s hope that this is a blip and that next year there will be more exhibitors with a wider range of products for us to have a look and feel of! J That said we found out about some interesting products and services, enjoyed catching up with several people and will definitely be making the effort to attend again next year. Direct links to products and organisations we visited: QAC Sight Village - https://www.qac.ac.uk/exhibitions.htm Sight and Sound Mobile Phones - http://www.sightandsound.co.uk/hardware/mobile-phones.html Barclays Accessibility (Sight) - https://www.barclays.co.uk/accessibility/sight/ Amazon Echo Studio - https://www.amazon.co.uk/amazon-echo-studio-high-fidelity-smart-speaker-with-3d-audio-and-alexa/dp/B07NQCKJSH/ref=sr_1_1?keywords=amazon+studio&qid=1573214695&sr=8-1 Look-UK - https://www.look-uk.org/ Synapptic TV Box - http://www.synapptic.com/products-tvbox.aspx En-Vision America (ScripTalk) – https://www.envisionamerica.com/products/scriptability/scriptalk/ Gizahand Illuminated long cane - http://www.gizahand.co.uk/illuminated-mobility-long-cane/ Traveleyes - https://www.traveleyes-international.com/ Macular Society - https://www.macularsociety.org/ ATW Solutions - https://www.atwsolutions.co.uk/ We’re always interested to know about other people’s experiences and thoughts. Please share these by commenting… Interested to learn more about VIDA Training? Read about our Training and Consultancy packages, specialising in Vision Impairment and Disability Awareness, Communication and Team Building or contact us for further information.
0 Comments
 Why are lamp-posts not soft and bendy? This is a question that I, Dave, seem to be asking myself on a regular basis at the moment.
Over the past few weeks I have come in to contact with a few metal posts whilst walking in to town. You know the type; they are the thick metal ones that usually are holding up road signs or a street lamp; the hard metal, non-forgiving ones. My assumption is that they haven’t been breeding or the council haven’t spent more money erecting new ones and that they’ve always been there and that I’ve always managed to navigate around them, be that with Errol, my old guide dog, or with my white stick. So, something has changed and, discussing this with Vicky, I can only conclude that I’m hitting these posts now due to my sight deteriorating to a point that I now don’t receive any indication that they’re there. Its weird because, if asked, I would have said that I haven’t been able to see them for ages, but whilst they haven’t been clear, we can only assume that I was getting some sense that they were there and therefore managing to avoid them whereas now I don’t even get that. No doubt that there are many people reading this and wondering what my stick is for if it’s not to help identify these posts so that I don’t walk in to them and you would be right. The white stick is designed to be swept from left to right, going just beyond the width of my shoulders, and therefore should make contact with and alert me to objects that are in my path. I would then be able to identify the object and navigate safely around it. Well that’s the theory! In practise, even when sweeping the white stick correctly, it is easy to just miss an object as you sweep and, especially if it’s just off centre and not very big (like a lamp post), not know about it until you hit it with your knee and/or shoulder or sometimes head. A few weeks ago I bounced off the post in the photo. This is a particularly hefty post situated near a bridge on the busy A23, my route to Redhill town centre. I was walking home, had just gone under the bridge and, as I came out from under the bridge I was thinking about a car on the pavement that I had had to navigate on my way in. Right at that point, I was also overwhelmed with the noise from a train passing overhead, a large lorry passing on the road creating an echo under the bridge and also the noise of a crane or mechanical equipment operating nearby and then boom… the noise of a metal pole hitting my head!! I’ve no doubt that someone in a car or walking near me would have seen it and I wouldn’t blame them if they had a small chuckle at my expense but I can tell you that it hurt… it also bent my sunglasses and split the skin above my eyebrow! So I have put this in the memory bank and haven’t hit this post since. I had also put hitting this down to the noise and nothing more. However, just this morning it happened again. It wasn’t the same post but it was on the same road! I must admit, I don’t walk in to town as often now as when I had Errol and this is partly due to not having a need to but also a bit of ‘can’t be bothered’. I would consider myself to have good cane technique and be safe with using it, however, these couple of incidences have knocked my confidence and brings home how difficult getting out and about really is. I do find that I’m having to concentrate lots more when out on my own and that I get tense in the shoulders and I’m sure that this is partly due to not really knowing if I’m going to hit anything… I wanted to share this with you all, not for sympathy, but to raise your awareness as to what it is really like for blind people using a white cane. Getting around with a white cane is slow, sometimes frustratingly so, and requires lots of concentration. I have a map of the town in my head that I recall all the time but this map isn’t just where roads are, but references key points/landmarks on a journey, pedestrian or safe road crossing points, particular areas where pavement parking is bad, etc. I also have to remember where particular shops or houses are or obstacles such as trim trail equipment in the school playground! It doesn’t stop there, I then remember where steps are, where doors are and whether they swing in or out and then what’s inside… where the reception or customer service desk is, what other hazards might be waiting, etc. This all requires a certain level of concentration and if this slips or I get distracted (this could be by a car parked on the pavement or a loud noise as in the example above, or one of those pesky A frames, anything really that I’m not expecting) then I could get injured or lost very quickly! A good example of a hazard/obstruction can be read in a Facebook post that I wrote back in June when I came across a builder’s van parked over a designated safe crossing point at the top of our road - https://www.facebook.com/705702186224015/posts/2160066160787603?s=725461053&sfns=cl We’re always interested to know about other people’s experiences and thoughts. Please share these by commenting… Interested to learn more about VIDA Training? Read about our Training and Consultancy packages, specialising in Vision Impairment and Disability Awareness, Communication and Team Building or contact us for further information.  Vicky: Dave and I have both read and enjoyed books 1 and 2 of this series – The Rosie Project and The Rosie Effect. My book club has also read at least book 1 (we’re a pretty rubbish book club – more a wine and crisps club - so don’t put any store by the fact that many of them won’t have read any further. **Update, one of our members has read all 3 and gave this one a 10/10!!**).
The books are described as feel good and they certainly are, leaving you with a warm feeling and hope about humanity (much needed at the moment) but they are deeper than that. The books are narrated by a genetics professor, Don Tillman and the first one is about his quest to find true love. Don has never been on a second date and finds social situations hard to read, therefore he devises a chart to find his suitable match. Things understandably don’t quite go according to plan. The second book continues with his relationship. The books make you smile and even laugh, but only ever with Don the narrator and never at him. His way of describing and relating to the world may not be familiar to many of us but it is intriguing and at times enlightening. Although I would urge everyone to read all 3 books, it’s the third book that I felt was worthy of a mention on this blog as it relates to a lot of discussions held within the wider disability community and touches on subjects that we discuss in our training. Unfortunately, RNIB Talking Books have not yet caught up, so Dave has been unable to read it yet. This third book, ‘The Rosie Result’ is set later in Don’s life when he also has a son, Hudson. The book covers a year in their lives and, with lots of anecdotes along the way, uses situations and other characters to cleverly raise questions about acceptance and fitting in, making the reader consider that maybe this shouldn’t be a one-way street, i.e. it shouldn’t all be about the person in the minority feeling pressurised to fit in with the majority. There’s a great analogy at one point by a speaker talking about the social model of disability – ‘Imagine everyone used wheelchairs except you and society was designed to accommodate them, you’d knock your head on door frames and have to ask for chairs at restaurants.’ It’s a great read and one that should have us all questioning how we behave and react in society. I don’t want to ruin the story for you but a few quotes will hopefully give enough of a sense of this book to encourage you to read the series… ‘Hudson preferred to wear the summer uniform, with shorts throughout the year. The school rules specified that Years 5 and 6 boys were to wear long trousers in the cold season, other than in exceptional circumstances. Hudson had argued that as he was the only student who wanted to wear shorts, he was exceptional, and therefore should be accommodated. After extensive discussion, the school agreed.’ Talking about ABA (Applied Behaviour Analysis) ‘Psychologists and parents love it. Of course they do, because that’s who it’s for – not for the kids being trained like puppies…She’s being trained to spend her life seeking approval from others.’ ‘…a lot of people think autistic people are weird and uncaring…my parents and teachers tried really hard to help me fit in because they didn’t want people to think I was autistic and then assume those things about me…but it took a lot of work that I could have spent on other things…what I learnt is that autistic people shouldn’t have to do all the changing’ ‘I’m not a person with autism any more that I’m a person with lesbianism. I’m lesbian, I’m autistic. When I get a cold, I have a cold; I’m a person with a cold and I want to get rid of it. Medical help appreciated. But being autistic and lesbian, that’s who I am, and I’m not interested in anyone trying to cure me of who I am.’ ‘I would never have the intuitive sense of others’ emotions that supposedly is needed to deal with interpersonal problems, but I had done my best using rationality, experience and hard-won learning about human behaviour and these skills had been sufficient.’ And the final word must go to Graeme himself: ‘This series of novels was inspired and informed far more by life experiences – my own and others’ – than research. Thanks to everyone – all of you – who contributed to those.’ We urge you to read these books and let us know your thoughts! Dave: Well, all that has done Vicky is make me want to read it; it sounds intriguing and interesting. Come on RNIB… how long will I need to wait until this book is available in an audio format? We’re always interested to know about other people’s experiences and thoughts. Please share these by commenting… Interested to learn more about VIDA Training? Read about our Training and Consultancy packages, specialising in Vision Impairment and Disability Awareness, Communication and Team Building or contact us for further information.  We’re asked many questions on our training sessions but it’s the first time that I (Dave) have been asked this one – “Did your wife dress you this morning?” Now of course I expect my wife to dress me every morning but the reality is that she is usually still asleep when I’m getting dressed so the answer to this question is “No”.
After we had all had a chuckle, we established that the actual question she was asking was “Did you choose your clothes or does your wife choose them for you?” She wanted to know how I, or blind people, choose their clothes because she thought this must be difficult if you can’t see. It is actually a really sensible and good question and my answer was something like: “It is relatively easy for a man to choose what to wear (or me anyway). I tend to wear jeans (blue and black) and then either a polo shirt or a smart casual shirt but pretty much I can put any top with any jeans and it’ll be fine. My VIDA training shirt has an embroidered VIDA Training logo so this makes it easy to identify but I keep my training clothes together in a particular part of my wardrobe so I know where it is when I need it”. However, for women it is likely to be harder due to the array of clothes (basing this fact on my wife’s wardrobe) and the importance of matching colours, styles, etc. Ultimately most vision impaired people will have a very organised wardrobe and be fully aware of what they have in it, what colours the items are and what they go with. I do get help with pairing my socks after they’ve been washed as I like to wear stripy socks or socks with coloured toes or soles but if I didn’t have help to do this then I would use pegs to pair them when I take them off so that they come out of the washing machine together. I don’t feel it appropriate to talk about my pants… surely that’s taking it too far! :-) In years gone by people used to sew different shaped and sized buttons in to their clothes so that they could then identify what an items colour was and what it went with by the shape or size of the buttons. Obviously you had to remember the relationship of each shape and size button but for some people this really worked and some still use this method today. A few years ago RNIB released a gadget called the Pen Friend. This is a scanning gadget that is used for many purposes including food items, DVDs/CDs, important letters and much more. It is also a great gadget for identifying clothes. It works by reading labels that have a unique bar code that You scan and record a description to and when you re-scan the label it reads out the description. You can get labels that are washable, freezeable, stickable and some that attach with a tie making this a great gadget for so many things. I guess nowadays there are also new apps coming out all the time that will be able to help. The Be My Eyes app could be used to get support with identifying clothes as could the Aira service that is soon to be released in the UK; you would just need to be careful when using one of these video call apps that you had at least your underwear on!! :-) We’re always interested to know about other people’s experiences and thoughts. Please share these by commenting… Interested to learn more about VIDA Training? Read about our Training and Consultancy packages, specialising in Vision Impairment and Disability Awareness, Communication and Team Building or contact us for further information.  No this is not our combined age (though not far off eh Dave 😊) but equally surprising is that Dave and I (Vicky) can’t believe we’ve written and posted 100 VIDA Insight blogs over the last few years…where did all that time go?
We really hope that you’ve enjoyed reading them as much as we’ve enjoyed thinking about topics and writing them. Most of our posts have been based on our own experiences but some have been based on books we’ve read, conversations we’ve had or other articles that have got us thinking. We hope they have provided you with some insight about vision impairments. We also hope that, on occasions, they’ve made you laugh. So, just in case you haven’t been reading them or have come late to the party and only seen a few, here’s some of our highlights (of course you’re welcome to read all 100):
Please have a read of any of these that catch your interest or as I said before, feel free to read the full 100! And, please do feel free to share your experiences and thoughts by commenting… We will continue writing a monthly blog so please check in on the 15th of each month to read our latest one. Interested to learn more about VIDA Training? Read about our Training and Consultancy packages, specialising in Vision Impairment and Disability Awareness, Communication and Team Building or contact us for further information. For my (Dave) birthday this year, Kelly, my wife, bought me a family ticket for ‘iFly’, an indoor skydiving centre in Basingstoke.
We booked up and trundled off to Basingstoke on a Tuesday afternoon (my actual birthday). The trip was pretty plain sailing other than we had to make a quick pit-stop at Fleet services so that my son could have a wee; apparently caused by the bumps on the M25! We checked in with reception, were informed that we would be part of training group number 20 which would be around 2.30 - 2.45pm and that we could wait in the viewing gallery where we could watch some other flyers. At 2.45pm we were called in to a training room with some other people, about 12 in total, where we were introduced to Dean, our instructor for the experience. We had informed the centre that I was blind so Dean already knew this before but I’m guessing my white stick also helped identify that I couldn’t see. Whilst the sighted members of our group watched a short demonstration film, Dean took me outside and gave me a 1:1 description of what I should expect, demonstrated the position that I would need to take when in the wind tunnel (using a small plastic doll with 1 leg) and agreeing on some tactile gestures that we would use. We were kitted up with a flight suit, helmet, goggles and ear plugs and then led into a waiting room next to the wind tunnel. Before they turned on the wind, Dean led me to the entrance to the tunnel and showed me the doorway and explained again what I would do to go in and then what I needed to do to leave the tunnel. He also explained that, due to my sight loss and limited communication in the tunnel, that I would have another instructor, Lewis, join us for the flight. I sat on the bench next to Kelly. By this point I had ear plugs in my ears, had a helmet on that also covered my ears and I was finding hearing and communicating difficult. This became almost impossible when the engines started up and the wind started to rush up the tunnel so all I could do was sit next to Kelly and wait my turn. One by one the others started to take their flights and we slowly shuffled along the bench towards the door. I had been put last due to needing 2 instructors but I didn’t have to wait long before I was being escorted across the short room to the tunnel entrance. My hands were placed on each side of the door so that I could get my bearings before I lifted them up above my head as we had discussed in the briefing. I could feel the pressure of the wind moving up through the tunnel and it sounded like I was sitting behind a jet engine about to take off down a runway! When Dean squeezed my wrist 3 times, another agreed signal, I let myself fall into the wind and… Well the strange thing is that was it; I knew that I was in the tunnel and my body was being suspended on a cushion of air – well more being pounded by an upward hurricane! But I couldn’t tell if I was spinning, how high I was from the floor, where I was in relation to the door or anything. I occasionally felt either Dean or Lewis give me a tug or move an arm or leg into a better position and I did brush the wall once but that was it. Soon my hands were being guided to the sides of the door and I pulled my legs down and stepped in to the waiting room. Slightly out of breath, a little wobbly on my feet and with a small amount of dribble on my chin (apparently this is normal and why the instructors wear visors on their helmets), I felt exhilarated from the experience. We repeated this process again and the second time I was taken up to around 10 – 12 feet off of the floor but I had no idea; I could have been 100 feet up and I wouldn’t have known! J I can’t describe the feeling… it was quite hard work from concentrating on body position but great fun and made you smile (and dribble). After the flights we returned to the locker room and took off our flight suits, helmets, etc. and it was nice being able to hear and communicate again. We chatted to Dean whilst he gave out our certificates and we discussed my experience. He said that most vision impaired flyers tend to do quite well as they put themselves in to the position as instructed and don’t tend to move from that position and this makes it easy to manoeuvre them around the tunnel. Dean had informed us that he worked for the Army and did the instructor job on a part-time basis when he isn’t out flying with the Army; it turns out that he is one of the Red Devil parachute display team and we were his last group at iFly for a couple of weeks as he was taking part in the 75th anniversary of the D-Day landing in Normandy in June. He also said that, if I wanted to do a tandem parachute jump that he could arrange it for me but I’m not sure if I’m quite ready to do that yet! J It was a great birthday present and I would recommend everyone to do it. People of ages 3 to 103 can fly and they can accommodate pretty much any disability – they’ve had people in wheelchairs flying before! There are some restrictions including a maximum weight limit and some medical conditions that prevent you from flying but that’s it. Thanks Kelly, it was an amazing experience and a great birthday present! 😊 You can find out more about IFly by visiting their website at: www.iflyworld.co.uk Vicky – it’s lovely to see Dave’s massive smile throughout the video of his experience – although I’m still not convinced this is an experience for me 😊 We’re always interested to know about other people’s experiences and thoughts. Please share these by commenting… Interested to learn more about VIDA Training? Read about our Training and Consultancy packages, specialising in Vision Impairment and Disability Awareness, Communication and Team Building or contact us for further information.  Dave and I (Vicky) have recently read (Dave in audio format, Vicky in paperback) this book by Nicola Naylor about a woman with a vision impairment travelling around India. Having been enthralled by India from childhood, this was a lifelong dream for Nicola, but also being an aromatherapist in the UK, she wanted to learn more about traditional Indian medicine too.
One review I read (courtesy of Good reads) described the book as “A traveller without sight takes her dream trip, alone and unsupported, learning about alternative healing and unveiling an India few are able to experience.” Whilst the book does provide an insight into Indian medicine, massage techniques and culture, which are in themselves interesting, from our point of view, the most fascinating parts of the book were Nicola’s thoughts about juggling her desire to travel independently with accepting the support offered along the way and accepting that, if offered in the right way, this sometimes enhanced her experiences rather than diminishing them. Below are some quotes that I think demonstrate the above in Nicola’s own words. From the start of the book: “Ordinary people, all of us, can do extraordinary things but not always. All our stories are individual and personal as are the inner and outer journeys that we make. That is what makes them refreshing and engaging. I hope that my own story offers enough flavour to whet the appetite but leaves people to discover their own recipes. When I was in the early years of coming to terms with having lost my sight, I know I would have chosen to starve rather than to digest other people’s survival triumphs and ways of overcoming disability”. “I had never been able to use my cane at home because of the stark associations with blindness that it stirred up. When I first lost my sight a guide dog was the only acceptable solution. I did not imagine that I would be able to use a cane in India to guide me around: the skill and technique of doing so required training, which I had resisted. However, I had reluctantly accepted that I needed some symbol to identify my disability for those times when I needed help. But when the moment approached to take out my cane, I realised I had underestimated my anxiety.” There is one section in the book where her friend goes to ‘nip out’ of the car to sort out an arrangement without her. “This time I felt that as the purpose of the visit directly concerned me I was not going to be left in the car like a child. People have often just ‘nipped’ to do this or that and left me to wait because they thought it easier and quicker than asking me to come. It makes me feel like an inconvenient appendage, or worse still, a nuisance invalid or child.” And when an air stewardess takes her hand in order to guide her: “With the stewardess I slipped my hand free of hers and placed my fingers gently but firmly on her elbow…. All at once I felt myself back in control, and the fear subsided.” Later in the book, Nicola discusses her feelings about receiving some assistance: “I did not want Goutam to feel I was rejecting his generosity and kindness. If I stuck clumsily to the western model of independence and self sufficiency I knew I risked offending my Indian friends. …I was beginning to see that giving and receiving help altruistically, according to need and opportunity was an integral part of Indian culture, a vital interdependence in a country with so many people and so much poverty…. A thought slid round in my head about how the ties of dependence might have a strengthening as well as a restricting pull, while independence could be an isolating straight jacket, I decided I needed to discover a little more about this approach and for a while be a less intrepid, less selfish explorer.” “When I reached town I decided to take a bus to Mr. Atuna’s evening yoga class rather than go back to the club. After another vigorous class, Mr Atuna said to a class member “Arun, please be taking our guest to the bus stop.” There was no sense in which a favour was being granted, or that I was being an inconvenience, and I felt comfortable with my need for help.” To me, this and other instances in the book highlight how we all have to adapt and change to accommodate each other or our circumstances, whether this be to do with assisting or being assisted by others or understanding cultures that differ to our own. I think this is summed up by a quote from another book we have read - ‘Touching the World’ by Cathy Birchall and Bernard Smith - “What you see depends mainly on what you look for”. ‘Touching the World’ is a fascinating account of 2 people's journey around the world on a motorbike, detailing their fantastic adventures and accounts of the generosity of human nature (in general) but also the strength of character required by both of them to undertake such a journey. Cathy has RP (Retinitis Pigmentosa) and whilst the book is much more than about Cathy's blindness, it is part of everyday life for Cathy and Bernard (her sighted partner) and so is an integral part of the book. We have discussed and recommended this book on many of our training courses and wrote an insight about it last February for #WorldBookDay - https://vidatraining.weebly.com/blog/february-28th-2018. We’re always interested to know about other people’s experiences and thoughts. Please share these by commenting… Interested to learn more about VIDA Training? Read about our Training and Consultancy packages, specialising in Vision Impairment and Disability Awareness, Communication and Team Building or contact us for further information.  I, Dave, know that I have spoken about apps for vision impaired people but I don’t think that I’ve done an actual review of an app for one of our Insights previously. Following a recent experience, I thought that I would share this with you…
I currently use an iPhone 8 and access it using the built-in ‘Voiceover’ (https://www.apple.com/accessibility/iphone/vision/) screen reader. Using a range of taps, swipes and gestures, I can access pretty much all of the phones built-in features as well as many apps including banking, shopping and social media apps. I also have a folder that contains several apps specifically created for vision impaired people including Microsoft’s Seeing AI (https://www.microsoft.com/en-us/seeing-ai?SilentAuth=1) and Soundscape (https://www.microsoft.com/en-us/research/product/soundscape/), Be My Eyes (https://www.bemyeyes.com/), KNFB Reader (https://knfbreader.com/) and TapTapSee (https://taptapseeapp.com/) to name just a few. Although I use a couple of these apps frequently (they all do a slightly different job), it was the Be My Eyes app that I used recently and the one that I wanted to share my experience of. The Be My Eyes website describes the app as: Be My Eyes is a free app that connects blind and low-vision people with sighted volunteers and company representatives for visual assistance through a live video call. And that is exactly what happens… a few days ago, whilst working at home, my laptop started playing up before it stopped responding completely. Similar to my phone, I use a screen reader called Jaws on my laptop but when the screen reader stops talking to me I have no idea what is on the screen or where I am. With no-one else in the house, I tried some of the other apps mentioned above to see if I could work out if there were any error messages on the screen but they just didn’t work. Finally I resorted to the ‘Be My Eyes’ app and called up one of the sighted volunteers. I was quickly connected to a lady (apologies for not getting your name if you ever read this) in Swansea. She was able, using the video connection, to direct me to point the camera to the screen and inform me that there was nothing on my desktop that was obviously causing my Jaws software not to speak. She was then able to escort me through shutting down the laptop using verbal prompts so that I could re-start it and continue with my work. The call took about 2 - 3 minutes and this included a short amount of ‘social’ chat where I found out that I was her first Be My Eyes volunteer experience, joked about her telling me that she had just got out of the shower (she quickly told me that she was dressed - not that I would have seen anything anyway) as well as me thanking her for her help. This wasn’t my first experience of using the app but this was by far the most important time I have had to use it. Previously I have tried to get someone to read the bill in a restaurant or read a label on a tub of herbs but these were really for testing purposes to see how the app worked. Currently there are 2,090,032 sighted volunteers who have downloaded the app and have signed up to be a sighted volunteer and just 124,087 vision impaired people who have signed up and use the app. This means that the chances of a sighted person actually being called up is slight but without the volunteers the app just wouldn’t work at all! If you want to be a volunteer, then just download the app and register. The app is available for the iPhone (https://itunes.apple.com/us/app/be-my-eyes-helping-blind-see/id905177575?mt=8)and Android (https://play.google.com/store/apps/details?id=com.bemyeyes.bemyeyes) platforms. If you have a vision impairment and feel that you would benefit from using this app, then download the app (as above) and follow the steps for registering as a vision impaired person. Once registered you’re just 30 seconds away from getting sighted support! :-) Read more about this amazing app at: https://www.bemyeyes.com/ We’re always interested to know about other people’s experiences and thoughts. Please share these by commenting… Interested to learn more about VIDA Training? Read about our Training and Consultancy packages, specialising in Vision Impairment and Disability Awareness, Communication and Team Building or contact us for further information.  It can be hard as a sighted person to know how much of our visual word to describe (we’ve talked about this before in reference to describing scenes, etc – Insight no. 12 - https://vidatraining.weebly.com/blog/12-greyhound-in-the-roadcommunication-part-2) but following on from Dave’s post last month –‘What do you look like’ (https://vidatraining.weebly.com/blog/95-what-do-you-look-like) this is particularly relevant when talking about people.
I think, as a sighted person first meeting/working with someone with a vision impairment, you have to resist the feeling of responsibility to describe everything visual. In reality, that’s just not possible and also, in general, not helpful. I, Vicky, think there’s 2 elements to consider: 1. When describing someone (or anything for that matter), how much is your interpretation and how much is factual? 2. How useful is the information you’re trying to give? So, thinking of number 1, if I described someone as attractive to Dave, obviously that’s my opinion and, if Dave could see them, it might not be an opinion he shared. Which would suggest this is probably not the most helpful way of describing someone 😊 smiley face! But, relating to number 2, if I just described the factual basics i.e. hair colour, eye colour, shape of face etc. of what benefit is this to Dave? Also, to be accurate, would I describe this person when they were standing right in front of us? – no probably not. I think it’s easier to think about this in the way we do when demonstrating sight guiding - give the information people need to know, for example, if the grounds uneven, etc., not the colour of the walls you’re walking past! So, if we’re in a crowd and people are using a lot of facial expressions or gestures to convey their meaning, then I will describe this to Dave so that he doesn’t miss out on important elements of the social interaction, but I wouldn’t waste my time (or his) on describing the physical appearance of everyone around us. However, obviously it’s an individual thing and some vision impaired people may want more information than others so it’s always worth checking if you’re unsure. It also depends on the context. Interestingly, I have never described myself to Dave. I don’t think physical appearances are that important to me anyway, although we have laughed previously, when I’ve been moaning about an element of my appearance I don’t like, about what visual image he has of me – he’s never said, which is probably a good thing 😊 smiley face. As Dave mentioned in his post though, when he works as a Community Employment Specialist, a role I support him with, I do sometimes describe people if I think their appearance may affect their job seeking (this is not me being judgemental, just passing on visual information that employers would see). However, and I have been asked if I do this, I never describe every member of the group and how they look, it’s just not relevant. I might mention if someone looked really ill or fed up or struggled to make eye contact with anyone, as this might influence the way Dave interacts with them on that day and help him think about how best to assist them. That said, Dave picks a lot of this up from people’s voice, manner etc. Taking Dave’s point about preconceptions based on appearances, I think my upbringing and the years in the different roles I’ve done have definitely proved to me not to pass judgement on people purely based on physical appearance (don’t judge a book by the cover and all that) but obviously there are things I will notice and which I may inadvertently form an opinion on (although for me, I’m much more likely to notice whether a person is smiley or not rather than the colour of their hair). I’m sure though, Dave also does this but forms an opinion from their voice, smell etc.! Having said all of that, there are times when I just can’t help describing a visual image to Dave even when it’s not essential – there are just some things that in my opinion he shouldn’t miss out on. As an example, we were up in London crossing the road and I said to Dave “oh wow, I have to describe what I can see to you”. Basically, there was a lady walking a little way in front of us with some (very) tight Lycra trousers and an extremely wobbly bottom. We didn’t pass any judgement though, just had a bit of a giggle! Dave - So, Vicky, what do you look like? Should I describe what I think you look like based on our previous conversations? :-) Vicky – You can risk that if you’re feeling brave 😊 - smiley face We’re always interested to know about other people’s experiences and thoughts. Please share these by commenting… Interested to learn more about VIDA Training? Read about our Training and Consultancy packages, specialising in Vision Impairment and Disability Awareness, Communication and Team Building or contact us for further information.  Have you ever listened to the radio and subconsciously given the voice a face? Or have you read a book and, if the author hasn’t described what someone looks like, done this yourself? Well that’s what I (Dave) do nearly every day.
I can’t see any detail now but, on a good day and in the perfect conditions, still see a rough shape/outline of someone that I then build upon using their voice or from how someone might have described them. Or, if I have known the person for a while, I might even pull a face out of my memory from back when I could see them and fit that to the shape! When I think about this though, I do wonder whether the picture I create is actually of someone as I remember them rather than what they look like now. Take my parents for example, I know they’re both in their 70s but am I remembering them from when I could last see them? And the answer is, probably but I don’t know. Perhaps they don’t look anything like I think they do! Some sighted people stereotypically assume that I need to feel someone’s face in order to create a picture but I’ve never done this… well not seriously anyway. And, no matter how well someone describes themselves or someone else, I never really know how accurate my picture is of them. Do I know what I look like? I have a memory of what I looked like when I was 30 and have an impression in my mind of what I look like now but I don’t really know. I’m told every time I have my haircut that I’m getting lots of grey hair but I’ve never seen them… so I can only think that people are joking with me J So does it matter that I don’t really know what people look like? No, not really, in fact, I reckon I’m sometimes better off not seeing! J What I do know is that I don’t have any preconceptions of someone from what they look like. I get to know people from how they speak and behave and this has definitely helped when working with people in my other role as a Community Employment Specialist. Is it useful to know what people look like? This depends on the situation. If I’m supporting someone with getting back to work then it is helpful to know some things, but this is usually more around appearance and not what they look like. For example, it is useful to know if someone has lots of tattoos or wears lots of jewellery or if they have an obvious impairment. I also like to know if someone has a tidy and clean appearance as this is important when seeking work. However, for most other situations, it really doesn’t matter what someone looks like. Do I miss not seeing people? How do I answer that…? I miss not seeing and why wouldn’t I want to see what my wife and kids actually look like. However, it’s very unlikely that I’ll be able to see clearly again so, being the realist that I am, I don’t think about this very much. I live life with what I have and think I’m doing ‘alright’! (This is an ongoing joke as everything is just ‘alright’) Ultimately my life is like a huge radio programme; lots of voices with no visuals… We’re always interested to know about other people’s experiences and thoughts. Please share these by commenting… Interested to learn more about VIDA Training? Read about our Training and Consultancy packages, specialising in Vision Impairment and Disability Awareness, Communication and Team Building or contact us for further information.  Having shared the Facebook post about a woman with a guide dog being told by another passenger to get off a bus as her dog couldn’t be a guide dog as it wasn’t yellow (yes I know, unbelievable but sadly true) – I, Vicky, thought it might be a good time to write a blog about assistance dogs and their different roles. It also happens to coincide nicely with the book I’m currently reading called ‘Dogs with Jobs’ by Laura Greaves – about all the different roles dogs undertake.
Assistance Dogs UK is an umbrella organisation for 8 Assistance Dogs charities in the UK. Their roles are different and varied – just like the dogs themselves! The 8 organisations are: · Canine Partners · Dog AID · Dogs for Good · Guide Dogs · Hearing Dogs · Medical Detection Dogs · Support Dogs · The Seeing Dogs Association Canine Partners (www.caninepartners.org.uk) provide dogs who assist people with physical disabilities and impairments with practical day to day tasks that may otherwise be difficult to perform. They also provide increased confidence, independence and social interaction. Their dogs wear a purple coat to identify them. Dog AID (www.dogaid.org.uk) empower people with physical disabilities to train their own pet dog to assist them with daily tasks which are tailored to the individual. These dogs wear a red and fluorescent yellow coat. Dogs for Good (www.dogsforgood.org) assistance dogs support adults and children with a range of disabilities and also younger children with autism. They also provide a Family Dog service that gives advice and support to help families with a child with autism get the most out of their relationship with their pet dog. In addition they train and support community dogs and their specialist handlers to work in activity and therapy in communities and schools. Their trained dogs wear a green coat. Guide Dogs (www.guidedogs.org.uk) provide dogs who will guide adults and young people who are blind or partially sighted. Qualified guide dogs wear a white harness with yellow fluorescent strips. Hearing Dogs (www.hearingdogs.org.uk) provide dogs for adults and children with a hearing impairment. These dogs are trained to alert deaf people to sounds they would otherwise miss, such as doorbells, alarm clocks, fire alarms etc. Qualified hearing dogs wear a burgundy jacket. Medical Detection Dogs (www.medicaldetectiondogs.org.uk) have dogs that are trained to detect the odour of human disease. This is used both for Bio Detection dogs and also Medical Alert Assistance Dogs who support people with complex health conditions and use minute odour changes in a person to alert them to take preventative action. They wear a red coat. Support Dogs (www.supportdogs.org.uk) are dedicated to increasing independence and quality of life for people with various medical conditions. They have 3 specific programmes: Autism Assistance Dogs for young children, Seizure Alert dogs for people with epilepsy and Disability Assistance Dogs. Their trained dogs wear a blue coat. The Seeing Dogs Alliance (www.seeingdogs.org.uk) Training dogs to guide blind and partially sighted people. Qualified dogs wear a yellow coat. As you can tell from this list, assistance dogs’ breeds and roles are widely different and varied. However, all qualified assistance dogs can be identified by the coats or harnesses they wear when working which, although different colours all have the name of the organisation clearly shown too. These assistance dogs shouldn’t be disturbed when working so please don’t stroke or feed them. If they are relaxing, then you can ask the owner if it’s okay to say hello to the dog. Legally guide dog and assistance dog owners have important rights under the Equality Act 2010 (EA). This Act ensures people with disabilities to have the same right to public services as everyone else. This includes taxis and minicabs unless the driver has a medical exemptions certificate from their GP. And yes, this law applies whatever the colour of the assistance dog!! In the past there have been negative comments on social media about these dogs being trained to be slaves, all I can say in response to that is that Dave’s guide dog, Errol always looked so proud to wear his harness, standing up straighter whenever the harness was readied for him (and just for the record, Errol was a black dog – a German Shepherd crossed with a Golden Retriever). Also, Guide Dogs and I’m sure all assistance dog charities, regularly monitor the health and well being of the dog and their focus is that it has to be right for the dog, not just the owner. In reading the book ‘Dogs with Jobs’ which covers a whole range of different roles that dogs undertake, from being assistance dogs, pat therapy dogs, a dog who acts (from his own choice) as a guide dog for another dog, dolphin detector dogs and a dog whose role it is to keep the Seagulls away from the Australian National Maritime Museum, I think what struck me most was each owner's immense respect for what their different dogs could do. Some had been trained, but many had a natural instinct for the role they undertook. And when the dog decided it wanted a break or to stop working, then that was respected too. And, just as an aside, in one of the other services Dave and I run, the Disability Equipment Service (www.disabilityequipmentservice.co.uk), we have been proud to sponsor a guide dog (aptly named Des), through the first year of his training. We have just raised enough money to do this again and will then also hope to start supporting Support Dogs too! This money is raised through kind donations of both money and disability equipment, which we then sell on to support the running costs of the website with 25% being donated to an Assistance Dog charity. Find out more about Des on our Disability Equipment Service Facebook page - https://www.facebook.com/disabilityequipmentservice/. And if you want to read more about Dave’s lovely guide dog, Errol, Dave wrote a heartfelt tribute to him when he sadly passed away in June 2017 - https://vidatraining.weebly.com/blog/archives/06-2017 We’re always interested to know about other people’s experiences and thoughts. Please share these by commenting… Interested to learn more about VIDA Training? Read about our Training and Consultancy packages, specialising in Vision Impairment and Disability Awareness, Communication and Team Building or contact us for further information.  To celebrate World Braille Day today (4th January), I thought that I would write an Insight about the reading and writing language created specifically for people with a vision impairment.
Louis Braille was born on 4 January 1809. He invented the unique Braille method of reading and writing in 1824 which we still use today. There are different levels of the braille language with the standard being known as non-contracted (grade 1) and contracted (grade 2). Non-contracted braille is the simplest form of braille with words being made up of individual letters or braille cells. Contracted braille uses some cells for groups of letters such as ‘th’, ‘ing’, etc. Each braille character or ‘cell’ is made up of 6 dot positions, arranged in a rectangle comprising 2 columns of 3 dots (like the number 6 on a die). A dot may be raised at any of the 6 positions or any combination making 64 combinations. The dots in each cell are numbered 1 – 6, 1 through 3 from top to bottom on the left and 4 through 6 from top to bottom on the right. The braille alphabet is listed below with the dot arrangement for each letter, for example, A = dot 1 and B = dots 1 and 2. a 1 b 12 c 14 d 145 e 15 f 124 g 1245 h 125 i 24 j 245 k 13 l 123 m 134 n 1345 o 135 p 1234 q 12345 r 1235 s 234 t 2345 u 136 v 1236 w 2456 x 1346 y 13456 z 1356 RNIB produce a braille alphabet card. This is a simple card showing the letters of the alphabet in both print and embossed dots and can be used by sighted and touch readers to learn the braille alphabet. The card also has numbers and some basic punctuation signs. It is free to order at: https://shop.rnib.org.uk/braille-alphabet.html RNIB also have a self-learn package for learning braille. It is called the Fingerprint Braille course and is designed to help you learn contracted (grade 2) braille. It costs £39 and can be purchased at: https://shop.rnib.org.uk/fingerprint-braille-course.html We’re always interested to know about other people’s experiences and thoughts. Please share these by commenting… Interested to learn more about VIDA Training? Read about our Training and Consultancy packages, specialising in Vision Impairment and Disability Awareness, Communication and Team Building or contact us for further information.  Happy Boxing Day everyone – and to keep you in the Festive Spirit here’s our final VIDA Insight of this year 😊 (smiley face)
Dave and I (Vicky) have been really pleased to provide Vision Impairment Awareness Training days to new Sight for Surrey staff, Vision Impairment and Disability Awareness training days to maintenance, cleaning and security staff at the Chantry Centre in Andover and Vision Impairment Awareness sessions for staff at Moorfields Eye Hospital in London. We also did some 2-2 work with a vision impaired person and their PA assisting with some practical solutions and Sighted Guide Techniques. In addition, we’ve undertaken product design discussions and testing for Unforgettable and the University of Surrey. And we went on our annual trip to Sight Village South East – read last week’s blog about this. It was Dave’s turn to visit Dans Le Noir this year with his family (read his blog - https://vidatraining.weebly.com/blog/86-dans-le-noir-daves-experience) whilst I took part in the Run in the Dark event with a friend (more about Run in the Dark and the Mark Pollock Trust is mentioned in my blog - https://vidatraining.weebly.com/blog/83-optimist-realist-or-something-else) We’ve also been busy with our other service – the Disability Equipment Service (www.disabilityequipmentservice.co.uk) and are really proud to be on the brink of sponsoring our second guide dog puppy who we hope to call Errol in memory of Dave’s wonderful guide dog who sadly died last year. Our first guide dog puppy, Des, has just completed his first year of training and is now officially a trainee guide dog. We’re really proud to have received a lovely photo of him in his new harness. Read more about him on our DES Facebook page - https://www.facebook.com/disabilityequipmentservice/photos/a.243234659204367/843872349140592/?type=3&theater And just to let you know, we’re changing things around a bit next year – we’ll still be doing regular insights but on a monthly basis with additional insights on particular days throughout the year and adhoc ones as the mood takes us 😊 (smiley face). Watch out for these - our regular ones will be on the 15th of each month. We’re always interested to know about other people’s experiences and thoughts. Please share these by commenting… Interested to learn more about VIDA Training? Read about our Training and Consultancy packages, specialising in Vision Impairment and Disability Awareness, Communication and Team Building or contact us for further information.  Back on 6 November, Vicky and I took our annual visit to the Sight Village South East exhibition at the Kensington Town Hall in London. Organised by the Queen Alexandra College (QAC) from Birmingham, The Sight Village exhibitions are held across the country and are the largest exhibitions dedicated to vision impairment in the UK.
As always, Vicky and I set off early to ensure that we got to the venue as the doors opened so that we could spend as much time looking around the exhibition and chatting to the exhibitors as we felt necessary. After a friendly welcome from the QAC team, we were quickly signed in and directed in to the exhibition halls. We didn’t have any particular product or service that we wanted to find out about so just methodically took our way around the exhibits. There were many exhibits that we knew about but we enjoyed catching up with some of the staff and volunteers at some of these stands including TravelEyes, Metro Blind Sports, Retina UK, Sight and Sound, VocalEyes and the ‘My Guide’ team at Guide Dogs. We also caught up with Stella at the Macular Society stand. Stella used to work with me at the RNIB and we’re still good friends. I also was tracked down by another former RNIB colleague called Andrew. Andrew still works for the RNIB as an Employment Officer. We chatted for a while about what we’re up to and I’m hoping to catch up with Andrew again soon in the New Year to discuss some potential joint working ideas. Another stand that we visited was Computer Room Services. Steve Nutt runs this service, predominantly a website selling products for vision impaired people but also website design, management and hosting as well as training and tech support. I had met Steve several years ago and we’re both on an email list for blind self-employed people (UKVISE) so it was nice meeting up with him again and introducing Vicky to him. We discussed websites mainly and the accessibility with regard to updating one. Steve was really helpful and no doubt we’ll be back in touch with him for more advice when we’ve some spare time (as if we get any of that ha ha). Another exhibit that was interesting was Oxsight (Oxsight smart specs). In brief, Oxsight produce a pair of smart glasses that have a camera with a prism lens that enables people that have tunnel vision to be able to see a wider angle image on the LCD screens within the glasses, thus being able to see more without the need to scan the area. Although I have tunnel vision, my central vision is pretty poor so these glasses wouldn’t work for me, however, I have heard podcasts about these specs and apparently they are really clever and work really well. The downside is that they come with a hefty price tag of over £2,000! There were many other stands that we visited and there really is some great work going on but there was one stand that really stood out for me (and Vicky I think). This was the Aira stand and we chatted through the service with the very informative Director of Sales, Marty Watts. Aira, in my opinion, is going to be the largest growing service for vision impaired people over the coming years. Basically, Aira is a remote support service using video communication with a human agent. It works by the vision impaired person signing up to the service (charges apply) and using either the Aira App on a smart phone or the Aira smart glasses, connecting to an Aira agent who will be able to, in real time, provide support through a video call. The agent can help with providing instructions, reading signs, navigating around an obstacle, finding a product or the counter in a shop, describing a scene, take photos and email them to you and much more. Already Heathrow has signed up and now provide Aira access for free to all customers passing through the airport and it is hoped that other airports and shopping centres will follow suit. I can see me using this service in the future and it’s just another app that I’ve added to my blind person’s toolbox! We like attending the Sight Village exhibitions and would recommend that, if you have a vision impairment or live with or work with someone that has a vision impairment that you make an effort and attend one of the exhibitions next year. No doubt Vicky and I will be back at the South East one again next year. We’re always interested to know about other people’s experiences and thoughts. Please share these by commenting… Interested to learn more about VIDA Training? Read about our Training and Consultancy packages, specialising in Vision Impairment and Disability Awareness, Communication and Team Building or contact us for further information.  No, not a follow on from Dave’s Doing it in the Dark post last week!!
I (Vicky) read a brief post by Martyn Sibley the other day, about how to change the world by just keeping on! Martyn describes himself as a regular guy who happens to have a disability called Spinal Muscular Atrophy (SMA). In his words ‘This means I cannot walk, lift anything heavier than a book or shower myself. Nonetheless I run Disability Horizons, am the author of 'Everything is Possible', I have a Degree in Economics & a Masters in Marketing. I love adventure travels (including an epic visit to Australia), I have great people in my life (including my soul mate), I drive my own adapted car, run my own business, have flown a plane, enjoyed skiing & SCUBA diving, and live independently on earth’. His brief post http://martynsibley.com/2018/10/how-to-change-the-world-keep-turning-up/ mentions how conversations help make changes. I appreciate it’s different for me as I (Vicky) don’t consider myself to have an impairment, and I don’t for one minute think I’m changing the world 😊 (smiley face), but I do have the VIDA Training logo on my car and obviously chat to people about my work and so I always need to be prepared to have that conversation, which is fine for me because I love what I do. As I’ve mentioned before, we’ve had a few interesting conversations on the train and obviously we chat to people on our training courses but below are 2 examples of some unexpected chats. One of these was at my son’s local football club where I got chatting to an ex-para who happened to be setting up a website to provide buddy support for ex-service men and women who had experienced trauma. He happened to be talking to someone who had lost their sight as a result of their work and, having seen my VIDA Training signs on my car, he asked what I did and we chatted about available options for supporting the person. Had I not had the VIDA Training signs on, we wouldn’t have had this conversation but neither would I have found out about what he did. Even more unusual was a long conversation I had with someone who came to my house to measure up for some curtains. She started off asking about my VIDA Training car signs but when I explained what I did and that my business partner was blind, she said ‘oh aren’t you wonderful’ – (I can hear Dave spluttering as he laughs with shock!!) Obviously I corrected her on that statement, went on to describe fully what I do, how I love my job and talked more about Dave and our equal working relationship!! After a long chat which covered guide dogs, disability in general (and mentioning people’s reactions to the ‘what an inspiration’ comment) she spoke about her infrequent contact with people with impairments and disabilities and also commented that her initial response will be different in the future. So, I think Martyn’s right, it is about being prepared to have these conversations, wherever and whenever and with anyone. We can all learn from each other. Dave – sorry still spluttering… wonderful… Vicky… not something you often hear in the same sentence! Only joking, Vicky is great; guess she has to be to put up with me as a business partner, colleague and friend. Vicky is right, we’re often asked questions about what we do and you never know what questions people are likely to ask. What does become quite apparent is that the general awareness around disability is low which is why we do what we do. Sadly the TV adverts and often TV programmes portray people with disabilities as being unable to do anything, that they don’t go out and usually don’t work. Yes, there will be some people who fall in to this category but there are people who don’t have a disability that probably fall in to this category also. I’m often referred to as ‘inspirational’ but I’m not; I’m just living my life as best I can whilst raising disability awareness. We’re always interested to know about other people’s experiences and thoughts. Please share these by commenting… Interested to learn more about VIDA Training? Read about our Training and Consultancy packages, specialising in Vision Impairment and Disability Awareness, Communication and Team Building or contact us for further information.  Well, who would have thought that I (Dave) would write an Insight blog on this subject?? It’s a subject that I’ve touched on previously but not one that I’ve dedicated a blog too and maybe for good reason!! :-)
And it’s at this point that I might disappoint some of you… it’s about how I manage tasks in the dark and not that naughty stuff that you thought this blog was about!! I touched on some of this in one of our recent Insight blogs – number 72. I thought you were blind? Part 1(https://vidatraining.weebly.com/blog/72-i-thought-you-were-blind-part-1) but thought that I needed to expand on it a bit further. Having little sight nowadays means that I usually do most tasks in the dark or without the lights on. I’m already noticing this as the mornings are darker and the evenings are drawing in and the lights are being turned on more often in our house. I rarely think about the lights and carry on with my tasks regardless; it’s not until Kelly (my wife) reminds me that she and the kids like to see what they are doing and will put some lights on. I’m usually the first adult up in our house and will take my shower in the dark, dress in the dark and then head downstairs to prepare breakfast – yes in the dark. There were several occasions last winter where Kelly walked in to the kitchen at breakfast time and commented that the kids might like to have lights on when they’re having their breakfast!! Thinking about this now that I’m writing this blog, I guess that light doesn’t make much of a difference to me any more so why should I bother putting the lights on. I’m sure I wind Kelly up as I walk around the house turning off the lights just like I do when I keep turning the heating thermostat down!! It has also reminded me of a section In a BBC Ouch podcast that I listened to recently called “Echoes put me off: How blind people choose a new home”. (https://www.bbc.co.uk/programmes/p06l50b3) It was presented by Damon Rose and Beth Rose (not related) with their guest Lee Kumatat and the section went as follows (copied directly from the transcript): LEE - Ah, I am really worried about leaving the lights on, yeah I am. And I do it all the time. And having just got this new guide dog one of the instructors said to me, I walked into my room at one point and it was dark, and she said, 'oh do you not turn the lights on for the dog?' and I said, 'no, never have and they seem to be fine'. And she said, 'well it is advised that you do turn the lights on for the dog'. BETH - Really, turn the lights on for the dog? LEE - Yeah. BETH - Okay, I would never have thought that. LEE - I know. So, now I am making a conscious effort. So, I turn the lights on for her but I forget to turn them off again. They then go on to talk about smart homes to turn lights on and off and then the need to close and open curtains… or not in the case of Beth who doesn’t bother with curtains or blinds and says ‘that’s the risk I take” when asked about being seen getting dressed! I know of some people who, even with the very small amount of vision they have, still like to turn all the lights on as they say it helps them see. Personally I wonder whether this is them hanging on to the little vision they have rather than embracing darkness… Maybe I’m just tight with my electricity! Getting around and completing tasks in the dark isn’t that difficult (well I guess I’ve just got used to doing things this way) but it does mean that I need to know where everything is, be organised, have strategies for completing tasks and rely on my memory. All of this leads to fatigue – linking nicely back to our VIDA Insight Number 79. Yawn – though hopefully not whilst reading this blog! (https://vidatraining.weebly.com/blog/79-yawn-though-hopefully-not-whilst-reading-this-blog) We’re always interested to know about other people’s experiences and thoughts. Please share these by commenting… Additional text for Facebook This post is No. 89 of our regular VIDA Insights and is also on our website blog page https://vidatraining.weebly.com/blog Interested to learn more about VIDA Training? Visit our website - www.vidatraining.co.uk to read about our Training and Consultancy packages, specialising in Vision Impairment and Disability Awareness, Communication and Team Building or contact us for further information. [Image shows the VIDA Training logo and then a very dark photo of Dave putting away a bowl in the kitchen and then a much lighter photo of Vicky washing up]  I, Vicky, got asked this on a training day the other day and had to think carefully about my response. I touched on this in blog no.73 ‘I thought you were blind part 2’ (https://vidatraining.weebly.com/blog/73-i-thought-you-were-blind-part-2) but when I was asked the question directly the other day I had to carefully consider my answer and have thought about it more since. The honest answer is ‘No, I don’t forget’ as Dave’s blindness is an important part of him and is an essential part of our working together. However, I’m always concerned that by saying I don’t forget some people will take from that that’s all I think about Dave - this is definitely not the case. So, I thought about it and decided the honest answer is no I don’t forget, but then I don’t forget he’s male, 6 foot tall, is married with 2 kids and has a slightly risqué sense of humour either 😊 (smiley face). And although it’s very much a part of our working day, it’s not our only focus – obviously food is a much more important consideration for both of us!
And that’s the explanation I will use going forward! And to add that I don’t expect Dave forgets he’s blind either but that he too thinks about other things 😉 (winking face) – again with food being the main one of course! There’s an interesting article by Jen Pearlstein’s on The Mighty website that we mentioned before https://themighty.com/2017/06/when-people-say-they-forget-about-my-disability/#_=_desribes which details how she now doesn’t find it a compliment when people forget she has a vision impairment and actually finds it offensive when they could assume it is a compliment. It’s a really interesting article and well worth a read. We’re always interested to know about other people’s experiences and thoughts. Please share these by commenting… Interested to learn more about VIDA Training? Read about our Training and Consultancy packages, specialising in Vision Impairment and Disability Awareness, Communication and Team Building or contact us for further information.  “In December 1996 the United Nations General Assembly proclaimed 21 November as World Television Day commemorating the date on which the first World Television Forum was held in 1996.” (from Wikipedia).
With it being World Television Day today, Wednesday 21 November, I (Dave) felt it appropriate to write about televisions and in particular how they have progressed in recent years to be much more accessible for vision impaired people. I am also considering upgrading my 13 year old Sony TV with a new, more accessible one so this VIDA Insight has become a bit of a research project at the same time! J TVs have generally been poor when it comes to accessibility. Some sets used to enable you to change the contrast of the text in the menus but that was pretty much it. Panasonic worked closely with the RNIB and released a TV in 2012 that spoke the channel number and programme title when you moved through the stations but it didn’t read the full electronic programme guide (EPG). There have been a few set-top boxes that have had screen reading capabilities with the most popular being the TVonics set-top box with built-in hard drive for recording TV programmes. I actually still have one of these and it still works well and is fully accessible but they were discontinued several years ago and can now only be bought second hand. They sometimes come up on the Disability Equipment Service website (www.disabilityequipmentservice.co.uk) – another service that Vicky and I run and also via places like eBay. However, things are progressing and there are now several TV manufacturers that are selling TVs with built-in screen reading facilities. I’ve yet to go to a store to test them out but, from digging around on the internet and from listening to podcasts, know that some are now available. I’m not going to go in to too much detail in this blog as it would just go on and on and on…. So I’ll mention below some of the leading manufacturers and provide a direct link to their website where you can read more information about their particular accessibility features. They are in no particular order and I’m not in a position to recommend one, however, as a Sony fan I will be looking at their range to see how good it is. It will need to be very good as the features offered on the Samsung TV’s appear to be very impressive. Sony – offer 3 main accessibility features that they are calling: · Vision Assist - Easy to see / convert to sound - · Hearing Assist - Easy to hear / convert to text - · Action Assist - Easy to use / support operation - https://www.sony.net/SonyInfo/accessibility/ Samsung – Have included a range of features including Voice Guide, Audio Description, High Contrast, Enlarge, Colour Inversion and Greyscale. They also have a few features for people with a hearing impairment as well as very smart learning tools including Learn Remote and Learn Menu. https://www.samsung.com/uk/accessibility/tv/ Android – There is now a screen reader called Voiceview available on smart TV’s running the Android operating system as well as on the Amazon Fire Stick. Similar to the above, Voiceview will read aloud screen menus, programme information, etc. https://support.apple.com/en-gb/HT205454 Apple TV – All Apple products now have a built-in screen reader called Voiceover. This is also the case for the Apple TV 4K and the Apple TV set-top box - you can navigate all of the menus without seeing the screen. https://support.apple.com/en-gb/HT205454 Panasonic – Although Panasonic have sold TVs with voice guidance since 2012, I can’t find any information about their newer TVs doing much more. Voice Guidance reads the on-screen text (channel and programme title) and volume levels but doesn’t read the full EPG. Sadly I couldn’t find a quick link to the Voice Guidance on the Panasonic website as it wasn’t that accessible with my screen reader and a Google search didn’t reveal much other than stories from 2012 when the Vieira range of talking TVs was launched! In addition to surfing the internet, I have listened to a few podcasts about accessible TVs. The best ones were from the RNIB’s Tech Talk podcast. RNIB Tech Talk is a podcast and radio show (RNIB Connect Radio) for vision impaired people who are interested in accessible technology. There have been discussions about accessible TVs recently on episodes 242, 243 and 249 during the weekly 1 hour Tech Talk programmes hosted by Steven Scott, Shaun Preece and Tim Schwart. They were talking about the Sony and the Samsung in particular and went in to some detail about how some are better than others when it comes to accessibility of the apps on smart TVs. You can listen to all of the RNIB Tech Talk podcasts at: https://itunes.apple.com/gb/podcast/rnib-tech-talk/id1151878596?mt=2 We’re always interested to know about other people’s experiences and thoughts. Please share these by commenting… Interested to learn more about VIDA Training? Read about our Training and Consultancy packages, specialising in Vision Impairment and Disability Awareness, Communication and Team Building or contact us for further information.  Back in August 2017 Vicky wrote an Insight blog on her visit to the Dans Le Noir restaurant – VIDA Insight Number 19 - Celebrating at Dans Le Noir. Well, back in July this year, I (Dave) visited the same restaurant in London (http://london.danslenoir.com/en/home/) with my family and thought that I should share my experience of the evening.
Unlike Vicky booking the private function room (Vicky – well it was for my husband’s 50th birthday!!), we booked a table in the main restaurant for our party of 8. Overcoming train cancellations and delays, we managed to arrive in good time and were greeted by the front of house team. We went through our menu choices, confirming whether we were having the Red (meat), Green (vegetarian), Blue (fish) or White (chef’s surprise) menu and had our drinks order taken that would be later served to our table. We were then introduced to Trevor, one of the restaurant’s blind waiters, who was to be our waiter for the evening. We all followed Trevor line astern (one behind the other) with our right hands holding on to the shoulder of the person in front. We went along a narrow corridor, through several thick blackout curtains before entering in to the restaurant. As with Vicky’s experience, the room was in complete darkness and I was told by my dad that he couldn’t see his hand in front of his face. My son spotted a very small red light which we assumed was a CCTV or smoke detector but this light didn’t help with seeing! We were seated 1 by 1 by Trevor. He took our names at this point and I was most impressed that he remembered them for the rest of the evening. He described the table to us and informed us where we would find our cutlery, glass and a bottle of water to share. He later served our drinks order, providing us with a glass with drink in it or, in my case, an empty glass and a bottle of cider that I had to pour myself. Interestingly for me, the room didn’t feel dark; in fact I continued to have the stars and flashing lights that I usually have, with these remaining with me throughout the evening. Thinking and talking about the experience with Kelly (my wife) afterwards, I was disappointed that I didn’t get some time off of having the flashes and flickering… it would have been quite calming if I had! What did become apparent as the evening went on was my dad getting quieter and quieter. I managed to swap seats after the main course so that I could sit next to him and found out that he was struggling, due to his hearing loss, to follow the conversation. He told me that it made him really appreciate what it must be like for me living with little sight all the time. What was quite funny was that, before I had moved, I was sitting between Kelly and my father-in-law. Kelly kept feeling for my arm for some reassurance that I was still there. I switched with my father-in-law to sit next to my dad but forgot to let Kelly know so she was very surprised and confused when she felt her dad’s arm and not mine!! J As for the food, we all had a 2 course meal and I had the red (meat) menu. My meal was split in to 3 small portions and I thought that this consisted of some steak, some duck and another meat that I couldn’t place. The dessert was moussey with a fruit sauce but I didn’t know what it was. After the meal, we were all lead out of the restaurant to the reception area where we were shown photographs of the meal and told what we had eaten. I can share this with you all now as they were changing their menus in September… we actually had sirloin steak, a wild boar pie and guinea fowl. The dessert was a deconstructed trifle (nothing like the sherry trifles my nan used to make!). Overall it was a great experience and I’m really pleased that we went. I’m sure that I’ll visit again at some point and would recommend this restaurant as a place to visit for something a bit different. Vicky’s write up of her and her family’s experience is available on our blog page - https://vidatraining.weebly.com/blog/19-celebrating-at-dans-le-noir We’re always interested to know about other people’s experiences and thoughts. Please share these by commenting… Interested to learn more about VIDA Training? Read about our Training and Consultancy packages, specialising in Vision Impairment and Disability Awareness, Communication and Team Building or contact us for further information.  November is World Diabetes Month, with World Diabetes Day next Wednesday on 14th November.
The theme for this year and next year is ‘The Family and Diabetes’. The international Diabetes Federation (IDF) website explains that a two-year timeframe has been chosen to best facilitate planning, development, promotion and participation. Materials and actions that IDF will develop over the two years of the campaign will aim to: · Raise awareness of the impact that diabetes has on the family and support network of those affected. · Promote the role of the family in the management, care, prevention and education of diabetes. World Diabetes Day was jointly introduced by the World Health Organisation (WHO) and the International Diabetes Federation and was introduced due to concern over an escalation in the number of people with diabetes. It is celebrated on the 14th November because it marks the birthday of one of the men who co-discovered insulin, Frederick Banting. Each World Diabetes Day famous buildings and monuments all over the world are lit up in blue. This powerful and striking image helps to spread the message about World Diabetes Day to diabetics and non-diabetics alike. Famous buildings that have been lit up in the past on World Diabetes Day include the Sears Tower, the London Eye and Brisbane City Hall. To find out more about World Diabetes Day and month visit https://www.worlddiabetesday.org/ and https://www.diabetes.co.uk/World-Diabetes-Day.html Diabetes is one of the leading causes of blindness and can lead to a condition called Diabetic Retinopathy. Diabetes can affect your eye in a number of ways, although not everyone who has diabetes develops an eye condition. For people with diabetes, regular eye tests and diabetic retinal screenings are essential. It’s important that the changes diabetes causes in the eye are picked up early because if treatment can be given at the right time, it can help prevent sight loss. Diabetic retinopathy is the most serious eye condition associated with diabetes and occurs when the tiny blood vessels at the back of the eye become blocked and leak. There are different types of diabetic retinopathy but in some cases this condition will lead to severe vision impairment. Advice provided on RNIB’s website to reduce the risk of developing diabetic retinopathy, or help to stop it from getting worse, is as follows: · Control your blood glucose level (also known as blood sugar level). · Tightly control your blood pressure. · Control your cholesterol levels. · Keep fit and maintain a healthy weight. · Give up smoking. Nerve damage, kidney and cardiovascular disease are more likely in smokers with Diabetes. Smoking increases blood pressure and raises blood sugar levels, which makes it harder to control Diabetes. · Attend regular retinal screening. There is also treatment available for diabetic retinopathy if it is picked up early enough. For further information about diabetic retinopathy and the support available, visit https://www.rnib.org.uk/eye-health/eye-conditions/diabetes-related-eye-conditions We’re always interested to know about other people’s experiences and thoughts. Please share these by commenting… Interested to learn more about VIDA Training? Read about our Training and Consultancy packages, specialising in Vision Impairment and Disability Awareness, Communication and Team Building or contact us for further information.  Queen Alexandra College (QAC) are once again bringing their Sight Village exhibition to London.
QAC say “The Roadshow allows visitors to come and find out more about the latest technology, equipment and support services available to people who are blind or partially-sighted. If you or a family member have a visual impairment it could be of great help to visit the show. We also welcome a wide range of professionals that support people with visual impairments and businesses looking to better meet the needs of their employees and customers.” Vicky and I already have pre-registered and will be attending on Tuesday 6th November. We had a great time last year, meeting many of the exhibitors and updating ourselves on the latest equipment and services available for vision impaired people and we’re hoping to do the same again this year. Of particular interest to us, AIRA will be present this year and with this service about to roll out in the UK, it will be good to see first-hand how this really works. The new OrCam is also meant to be a great device so it’ll be interesting to see this compared to last year’s version. If you’re heading to the exhibition on Tuesday 6th November then keep a look out for Vicky and I; we’ll have our VIDA shirts on so will be relatively easy to spot for most of you! The exhibition specifics… Date & Times Tuesday 6 November, 10:00 – 17:00 Wednesday 7 November, 10:00 – 15:30 Venue The Kensington Town Hall, Hornton Street, W8 7NX. Food & Drink Refreshments are available for purchase throughout the event. For more information about the exhibition and to pre-register, visit: http://www.qac.ac.uk/exhibitions/sight-village-southeast/3.htm We’re always interested to know about other people’s experiences and thoughts. Please share these by commenting… Interested to learn more about VIDA Training? Read about our Training and Consultancy packages, specialising in Vision Impairment and Disability Awareness, Communication and Team Building or contact us for further information. ![[Image shows a screenshot of the TedTalk video showing Mark Pollock and Simone George during the talk]](/uploads/5/7/5/8/57580571/optimist-realist-or-something-else_orig.png) Following on from our ‘Will my sight be restored in the future?’ VIDA Insight blogs over the last 2 weeks (https://vidatraining.weebly.com/blog/80-will-my-sight-be-restored-in-the-future-worldsightday-11th-october; https://vidatraining.weebly.com/blog/82-will-my-sight-be-restored-in-the-future-part-2), I, Vicky, came across this fantastic TEDTalk by Mark Pollock and Simone George called ‘A love letter to realism in a time of grief’.
We’ve followed Mark’s story since last year when Dave and I participated in the London #RunintheDark event, helping to raise money to find a cure for paralysis (https://www.runinthedark.org/london/). It’s happening again this year on 14th November if anyone is interested in joining in (Vicky is hoping to run it this year :-o). We were particularly interested to watch and listen to this #TEDTalk as it seemed linked to the thoughts and discussions we’d written about in our 2 previous Insights. It didn’t disappoint, hence why we're sharing it with you. It’s nearly 20 minutes long, and is, in our opinion, well worth taking the time to listen to… Our title ‘Optimist, Realist or Something Else’ is the title of a blog Mark mentions during the TEDTalk. https://www.ted.com/talks/mark_pollock_and_simone_george_a_love_letter_to_realism_in_a_time_of_grief#t-1150103 We’re always interested to know about other people’s experiences and thoughts. Please share these by commenting… Interested to learn more about VIDA Training? Read about our Training and Consultancy packages, specialising in Vision Impairment and Disability Awareness, Communication and Team Building or contact us for further information. Additional text for Facebook This post is No. 83 of our regular VIDA Insights and is also on our website blog page https://vidatraining.weebly.com/blog Interested to learn more about VIDA Training? Visit our website - www.vidatraining.co.uk to read about our Training and Consultancy packages, specialising in Vision Impairment and Disability Awareness, Communication and Team Building or contact us for further information. [Image shows a screenshot of the TedTalk video showing Mark Pollock and Simone George during the talk]  Vicky: In reading Dave’s post last week it struck me that there must be a fine balance between getting on with life and learning to live with sight loss/vision impairment but also wondering if there is a chance that vision may be restored in the future. I guess it’s the same with a lot of different impairments. Last year Dave and I took part in the Run in the Dark event in London for the Mark Pollock Trust, funding research into a cure for paralysis. Mark Pollock is blind and had a spinal injury following a fall from a hotel room and now pioneers research into potential cures for paralysis.
On the other side of the coin, Dave and I have read articles before by people with vision impairments who say they wouldn’t accept a cure for blindness should one become available to them as they have ‘accepted’ being blind and that it has shaped their lives and makes them who they are. I have also read similar comments from people who are wheelchair users. However, there are many others who say they haven’t ‘accepted’ their condition but learnt to live with it the best they can, making the best of life as Dave said in his blog last week but who certainly wouldn’t turn down a cure if it was offered to them. It’s a difficult one to get our heads around if we don’t consider ourselves to have an impairment. I guess none of us really know how we would feel, cope or respond if we’re not in that position. I know a colleague of ours who is a wheelchair user, was told by someone (in quite a patronising tone) that he was ‘such an inspiration’ and responded, politely, that he has little choice and was just getting on with his life. At the other end of the spectrum though, a recent discussion on a Facebook group called ‘VI Talk’ included comments that people with vision impairments had received from those with sight. One of these was ‘I would rather die than be blind’. One person said they had responded to this comment by saying ‘Why wait?’ which made me smile. So no easy answers apart from getting to know someone or ask them rather than making assumptions or passing judgements. I saw an adaptation of the saying ‘never judge a man until you’ve walked in his shoes’ which read ‘Don’t judge me till you walk a mile in my shoes or spend a day in my life’. I think it’s a good maxim to live by! Dave: I think there is a fine line here and it definitely depends on the person and their situation. I do remember talking to a vision impaired lady many years ago and her saying that having no sight was easier than when she had just a little bit. I couldn’t get my head around this and still can’t really as I feel that even a little vision is helpful. However, I do lots in the dark so maybe the little vision I have isn’t needed all the time – maybe I’ll write an Insight on that soon! We’re always interested to know about other people’s experiences and thoughts. Please share these by commenting… Interested to learn more about VIDA Training? Read about our Training and Consultancy packages, specialising in Vision Impairment and Disability Awareness, Communication and Team Building or contact us for further information.  White cane day isn’t celebrated in the UK as much as it is around the world but we thought that we would give it a mention… #WhiteCaneDay.
As a white cane user myself (Dave), the white cane is the one item that I can’t leave the house without (obviously other than my clothes and shoes!). Simple yet effective, the white cane allows me to have a reasonable level of independence and, if the sweeping technique is used correctly, it enables me to detect steps, kerbs and other hazards such as lamp posts, A frames and cars parked on the pavements. What it doesn’t detect is overhanging objects such as trees and bushes. This is one of the reasons why I wear my sunglasses nearly all the time as they protect my eyes from being poked or scratched from these things. If you have a pavement outside your house, please ensure that you keep your trees, hedges or bushes well-trimmed. Here are 5 facts you might not know about the white cane: 1. To suit the shortest children to the tallest adults, canes come in all sizes, some as long as 6ft (1.85m) tall. 2. Some people tap their canes for the audio feedback, while others keep continuous contact with the ground. 3. Canes can have dozens of different tips: plastic, metal, round, flat, soft, hard and rolling. All serve a different purpose and are appropriate in different environments (depending on the floor surface). 4. The majority of canes fold up but some are telescopic and some are rigid. 5. Although the international white cane is white in colour, you can get canes in different colours or with bright patterns on. These are sometimes preferred by children and teenagers and it is felt that it is better for them to use a cane to get around safely than not use one because it is white. If you see me or anyone else out using a white cane, please remember these 3 things… 1. Acknowledge that you’re there. Most vision impaired people are tuned in to their environments and can hear you coming towards them. Hiding in a hedge or jumping out of the way makes you look silly; just say ‘Hi’! 2. Getting around without sight can be daunting and we do have to concentrate on where we are all the time. It is therefore appreciated if you, the sighted person, moves out of our way when we’re approaching. You can see where you’re going; we’re likely to get lost if we go off our memorised route or can get disorientated if we need to turn to avoid you. 3. If you see someone with a White Cane waiting to cross a road, rather than assume that we need help, ask us if we would like some assistance with knowing when it is safe to cross – we don’t usually bite!! J We’re always interested to know about other people’s experiences and thoughts. Please share these by commenting… Interested to learn more about VIDA Training? Read about our Training and Consultancy packages, specialising in Vision Impairment and Disability Awareness, Communication and Team Building or contact us for further information.  I’m (Dave) very much a realist when it comes to my sight and live each day as best I can using the limited sight that I have. I’m regularly asked if there is any treatment or operations that I could have to improve or restore my sight and my simple answer to these questions is ‘No, not really’.
However, I have spoken to my consultant at Moorfields about the research in to my condition (Retinitis Pigmentosa (RP)) and have had discussions about retina implants and in particular the Argus II ‘bionic eye’ developed by American company Second Sight Medical Products, as this is the most advanced treatment currently available for RP in particular. “Surgeons at Manchester and Moorfields Eye Hospital made history by delivering the world’s first trial of the Argus II Bionic Eye implants in RP. Specialists at both Hospitals initially supported early studies, which demonstrated that the Argus II restores a degree of visual function to patients who have suffered complete blindness due to the condition.” (https://www.england.nhs.uk/2016/12/bionic-eye-surgery/) Currently my small amount of vision is probably better than what I would get from the Argus II and I don’t have to wear camera glasses or charge batteries, etc. so this treatment isn’t on my radar just yet. However, I do believe that there might be a light at the end of the tunnel (I couldn’t help myself with this pun) either via a bionic eye or with stem cell treatments. A story broke recently that pricked my interest about a bionic eye that had been printed using a 3D printer. I read an article on the Daily Mail website that covered the story quite well… “Scientists have taken another important step towards building the world's first bionic eye, which could give millions of blind people the chance to see again. In a world first, a team of researchers have built a three-dimensional artificial 'eyeball' capable of detecting changes in light levels. The bionic eye, which mimics the function of the retina in order to restore sight, works in tandem with an implant to convert the images it sees into electrical impulses for the retinal cells, which carry image signals back to the brain. By using 3D printing, scientists were able to produce the prototype much faster than previous efforts – sparking hope this could be a viable commercial solution in the future. (http://www.dailymail.co.uk/sciencetech/article-6109589/One-step-closer-creating-worlds-bionic-EYE-Scientists-3D-print-prototype-eyeball.html).” It is the 3D printing that took my interest in particular and the ability to print light detecting electrodes on a curve. I remember attending an exhibition in London 6 or 7 years ago that showcased 3D printing and what you could do using this new technology. Items ranged from candle stick holders and small ornaments to remote control cars through to some pretty cool stuff like personalised printed electric guitars and drum kits. Back then they were talking about 3D printing being available in the home in 10 – 20 years with the future being that you’ll be able to download a template and print your own parts – circuit boards for washing machines for example. I certainly didn’t think back then that this technology, particularly in such a short time period, would be printing a bionic eye or could be the answer to restoring my sight! As I mentioned at the beginning, I am a realist and am not expecting my vision to be restored before I die, however, I am excited by this kind of developments as it demonstrates that work is being done and there could be hope, if not for me, for people in the future. We’re always interested to know about other people’s experiences and thoughts. Please share these by commenting… Interested to learn more about VIDA Training? Read about our Training and Consultancy packages, specialising in Vision Impairment and Disability Awareness, Communication and Team Building or contact us for further information. |
Our VIDA Insights...Following our experiences from delivering our Vision Impairment Awareness training days over the past couple of years, we know that there’s loads more that we could talk about and examples we could have shared. Whilst these won’t be a substitute for our training, they will give you an insight (hence the name!) into our thoughts, observations and experiences from each of our perspectives - Dave’s living with sight loss and Vicky’s from being a sighted person and working alongside and supporting people who have sight loss. Archives
October 2019
Categories |
RSS Feed
